A child in Florida, who has been given weeks only to live today – and it will not be possible without an unknown donor's generosity covering her medical bills.
When Bill and MiG Longineri welcomed their second child, Milli, in August 2023, they were told that it is no hope to stay because of a Rare Ethnic brain disorder is called Alobar Holoprosney (Hpe).
Hpe affects one in every 10,000 live births, and most children do not live after the first week, as statistics appear. Millie was born with the most severe forms of the disease.
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“We discovered that it has Rare brain “Part of her brain has not evolved, and the other part did not develop properly,” said Meg Longngleri in an interview with Fox News.
“Therefore, there is no division between the hemispheres of the globe and the center.
Millie Longhenry (left) was diagnosed with a severe congenital deformation of the brain called Alobar Holoprosney (HP) at the age of two months. (Nadine B. Photography)
Doctors told the parents that “Miley should have been a miscarriage or a front birth.” “Moments should have died after birth.”
“They told us that more than 95 % of patients with this diagnosis do not survive from the first few months … and anyone who escapes from the past requires a huge deal of medical care, such as feeding breathing tubes.” “Usually they have a brain function.”
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After spending two months in the hospital, Millie was sent to the home to take care of Hospice with four to six months to live – but the Longhenrys was not ready to surrender.
“God has been in mind,” said Bill Longlerneri. “God had a different planAnd God alone was not really able to make this decision. “
The doctors told the child's parents: “Miley should have been aborted or ahead.”
A friend recommended that Millie's parents continue with Dr. Brandon Krufford, a job neurologist at the Austin Center in Austin, who specializes in using non -invasive techniques without medications or surgery.
When reviewing MRI and Millie's examination, Kroford said he saw “tremendous potential”.
Millie, who was filmed with her great brother, Theo, was born with the most severe forms of Alobar Holoprosney. (Nadine B. Photography)
He told Fox News Digital, while a large part of her brain is missing, the upper part is “relatively healthy and works well.”
“She started getting the idea that this child is really trying – she is not a decline, she is really fighting to live her life in this world.”
Difficulty challenge
Under the auspices of Kraovord, Millie started a treatment plan that included laser light treatments and sound wavelength that uses sound waves to stimulate normal Healing operationsAnd the integrity of the primitive reflex, which “restores” the brain's body and helps children learn better control of their movements.
Dr. Marcela Madeira, a neurosurgeon who is a nerve director of nerves, also collaborated in Miley treatment to ensure safety and effectiveness.
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“This mixture of regenerative medicine, developmental functional neuroscience, optical formation that provokes and nourishes the development of its brain and building neurological flexibility,” Krufford told Fox News in a separate interview.
“For example, she can see clearly and respond to visual signals – however she does not have the majority of those visual paths that have been developed in her brain,” continued. “This means that her brain has reinforced it and returned it from a vision, and this is the amazing part, that the brain is able to do so.”
At the Neurosology Center in Austin, Millie started a treatment plan that included laser light treatments, the treatment of the audio wave that uses sound waves to stimulate natural recovery processes and the integration of primitive reflection. (Bill and MiG Longngleri)
Bell Longngieri prescribes the treatment as “the combination of physical therapy and nervous functions.”
Today, Croford, Millie, said not only to survive, but prosperous – something very rare for this situation.
“It is communication Growth and development He said: “We are working to crawl with her now – this has not heard for this. Her common attention continues to improve, even her ability to eat.”
Crovord said that Millie began to vote, saying “My mom” and “Dad” and communicating with her great brother, Theo.
“She has a little courageous personality, he is amazing,” he said. “Frankly, if you look at her and interact with her personally and then look at MRI, you will not think that he is the same child.”
Millie smiles and laughs and responds to her name. Her family said that she also understands people's speech and uses sign language. (Nadine B. Photography)
Millie smiles and laughs and responds to her name. It also understands people's speech and uses sign language.
“Millie will not be here today if we do not do the different things to help her brain, to help her restore weapons,” added Mig Longngieri.
Answer the prayers
Last month, the Millie family faced the possibility of its intensive cancellation Nervous treatment Because of the financial restrictions.
Meg Longhenry recently told Crawford that they would have to cancel their next treatment due to lack of money – but he told her to come anyway.
“I said, don't worry about it, just come. There is no way to drop care with Millie – we have reached a large extent.”
On the morning of March 27, when the Croford team was about to perform another Renewal medicine He said that the procedures with Millie prayed for divine intervention, and told Fox News Digital.
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“After two hours, we received a random phone,” he said. “Another patient was following the story of Miley, and she said:” I feel I am supposed to donate something for the issue of Miley, and the reception office said, well, it will be great. “
Bill Longngiri is a photographer holding his daughter Millie. “It continues to grow and develop and increases strength,” he said. (Bill and MiG Longngleri)
The donor width of the suspended total balance for Milli treatment – more than $ 47,000.
“It is impossible to understand this level of generosity from a stranger,” said Bill Longngleri.
“We have to follow this treatment, but it is not. InsuranceSo we just do everything we can make it work. “
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Ultimately, Longhenrys discovered who covered medical expenditures – a former patient from Dr. Cruford. They were able to contact her and thanked her for donating.
While this unknown gift purifies a major financial obstacle, Milli's journey has not ended, the family participated.
Miley was filmed with her great brother Theo. In March, an unknown donor named the Neurosology Center in Austin was presented and offered to cover the distinguished medical debts of Longhenrys. (Bill and MiG Longngleri)
Follow -up treatment will require every four to six months, specialized home equipment and travel for continuous care, which does not cover insurance.
“I think financial resources are always really scary for us … but there is no price that I can put in her life,” said Meg Longri. “I will continue to fight and do what I need to do so that you can get the best life they can.”
“There is no price that I can put in her life.”
The family also adopts Significantly for their faithThey believed that Jesus worked through Dr. Campbell to help save the life of Miley, according to her mother.
And she said: “We serve God the great that he is greater than our greatest fears – he is the greatest doctor, and he takes care of us as we need to be.”
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“It is very encouraging to see the growth that we have repeatedly told that we will not see it.”
For more information about Millie's journey and progress, people can visit Movingmountontsformillie.org or Movingmountainsformillie on Instagram.
